A History and Timeline of Autism
Fact checked by James Lacy
The history of autism as a formal diagnosis began in 1911. Swiss psychiatrist Paul Eugen Bleuler coined the term, using it to describe what he claimed to be the childhood version of schizophrenia.
Since then, our understanding of autism has evolved, culminating in the current diagnosis of autism spectrum disorder (ASD).
Takeaway
Most of the public history of autism has been dominated by allistic (non-autistic) professionals and caregivers. Some of the language in this article includes stigmatizing terminology and ideas that aim to accurately reflect the language used by the cited experts.
Timeline
1920s
1926: Grunya Sukhareva, a child psychiatrist in Kyiv, Russia, writes about six children with autistic traits in a scientific German psychiatry and neurology journal.
1930s
1938: Louise Despert, a psychologist in New York, details 29 cases of childhood schizophrenia, some of whom have traits that resemble today's classification of autism.
1940s
1943: Leo Kanner publishes a paper describing 11 patients who were focused on or obsessed with objects and had a “resistance to (unexpected) change.” He later named this condition “infantile autism.”
1944: Nazi-funded, Austrian pediatrician Hans Asperger publishes a popularized scientific study on autistic children, a case study describing four children ages 6 to 11. Much of his science was rooted in eugenics and the "race hygiene" politics of the Nazi regime. He notices parents of some of the children have similar personalities or eccentricities, and regards this as evidence of a genetic link. He was foundational to the development of the phased-out functioning labels (high vs. low functioning), and the former DSM diagnosis, Asperger’s syndrome, was named after him.
1949: Kanner proclaims his theory that autism is caused by "refrigerator mothers," a term used to describe parents who are cold and detached. This theory has long been disproved.
1950s
1952: In the first edition of the American Psychiatric Association's Diagnostic and Statistical Manual of Mental Disorders (DSM), children with autistic traits are labeled as having childhood schizophrenia.
1956: Leon Eisenberg publishes his paper "The Autistic Child in Adolescence," which follows 63 autistic children for nine years and again at 15 years old.
1959: Austrian-born scientist Bruno Bettelheim publishes an article in Scientific American about Joey, a 9-year-old autistic child.
1960s
1964: Bernard Rimland publishes Infantile Autism: The Syndrome and Its Implications for a Neural Theory of Behavior, challenging the “refrigerator mother” theory and discussing the neurological factors in autism.
1964: Dr. Ole Ivar Lovaas, creator of LGBTQ conversion therapy, begins working on his theory of Applied Behavioral Analysis (ABA) therapy for autistic children. While ABA is the current standard therapy for autistic people, autistic self-advocates draw parallels to the therapy as a form of conversion therapy for autistic people and have begun pushing against its use due to the post-traumatic symptoms individuals experience after ABA.
1965: The Sybil Elgar School begins teaching and caring for autistic children.
1965: A group of allistic parents (people who are not on the autistic spectrum) of autistic children have the first meeting of the National Society of Autistic Children (now called the Autism Society of America).
1967: Bruno Bettelheim writes Empty Fortress, which reinforces the “refrigerator mother” theory as the cause of autism.
1970s
1970s: Psychiatrist Lorna Wing proposes the concept of autism spectrum disorders. She identifies the “triad of impairment,” which includes three areas: social interaction, communication, and imagination.
1975: The Education for All Handicapped Children Act is enacted to help protect the rights and meet the needs of children with disabilities, most of whom were previously excluded from school.
1977: Susan Folstein, M.D., and professor Michael Rutter publish the first study of twins and autism. The study finds that genetics are an important factor for being autistic.
1980s
1980: The third edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM-III) includes criteria for a diagnosis of infantile autism for the first time.
1990s
1990: Autism is included as a disability category in the Individuals with Disabilities Education Act (IDEA), making it easier for autistic children to get special education services.
1996: Temple Grandin writes Emergence—Labeled Autistic, a firsthand account of her life with autism and how she became successful in her field.
1998: Andrew Wakefield, M.D. publishes his paper in the Lancet suggesting that the measles-mumps-rubella (MMR) vaccine triggers autism. The theory is debunked by comprehensive epidemiological studies and eventually retracted.
1999: The Autism Society adopts the Autism Awareness Puzzle Ribbon as “the universal sign of autism awareness.” Due to the symbol's implications of autistic people as incomplete and its association with autism hate groups, the autistic community now uses an infinity symbol (black or rainbow-colored) instead.
2000s
2003: The Global and Regional Asperger Syndrome Partnership (GRASP), an organization run by people with Asperger’s syndrome and autism spectrum disorders, is formed.
2003: Bernard Rimland, M.D. and Stephen Edelson, Ph.D. write the book Recovering Autistic Children.
2006: Ari Ne'eman establishes the Autistic Self Advocacy Network (ASAN).
2006: Dora Raymaker and Christina Nicolaidis, M.D. start the Academic Autistic Spectrum Partnership in Research and Education (AASPIRE) to provide resources for autistic adults and healthcare providers.
2006: The president signs the Combating Autism Act to provide support for autism research and treatment.
2010s
2010: Andrew Wakefield loses his medical license and is barred from practicing medicine, following the retraction of his autism paper.
2013: The DSM-5 combines autism, Asperger’s, and childhood disintegrative disorder into autism spectrum disorder.
2014: The president signs the Autism Collaboration, Accountability, Research, Education and Support (CARES) Act of 2014, reauthorizing and expanding the Combating Autism Act.
2020s
2020: The Centers for Disease Control and Prevention estimates one in 54 children has been identified as having an autism spectrum disorder (ASD) diagnosis.
2020: A large-scale genetic sequencing study identifies 102 autism-related genes involved in early brain development.
2023: The Centers for Disease Control and Prevention estimates 1 in 36 children has been identified with autism spectrum disorder (ASD).
Autism research and advocacy continue to build on these past events. As autistic self-advocates are growing in both political power and public presence, they aim to move towards a future of total acceptance and understanding of autistic people.
Advocates also work to provide access to resources to address the current gaps in support that autistic children and adults currently experience.
Read the original article on Verywell Health.
